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Research Organizations/Patient Support

UC Irvine provides fully integrated research, prevention, diagnostics, treatment and rehabilitation programs for patients and families coping with cancer. The Chao Family Comprehensive Cancer Center at UC Irvine Medical Center is ranked among the nation’s best hospitals for oncology treatment by U.S. News & World Report.  As Orange County’s only Comprehensive Cancer Center, a honor bestowed by the National Cancer Institute, you can participate in the many informational and educational programs offered by the university.

Scientific/Professional Groups

American Brain Tumor Association (ABTA), 800.886.2282.

American Cancer Society (ACS) - A nationwide, community-based organization with chartered divisions in all states. ACS focuses on research & education and provides some patient/community services; 800.ACS.2345.

American Institute for Cancer Research (AICR) – National organization focusing on the interrelationship of nutrition & cancer; 800.843.8114.

American Society of Clinical Oncology - Scientific and educational programs and other initiatives intended to foster the exchange of information about cancer.

Leukemia Society of America (LSA) - LSA is a national agency fighting leukemia and its related diseases (all lymphomas, including Hodgkin's disease, and multiple myeloma); 800.955.4572.

Lymphoma Research Foundation of America - Provides grants for lymphoma research and support services for lymphoma patients and their families.

Society of Gynecologic Oncologists (SGO) - SGO works to improve the care of patients with gynecologic cancers, and advance the practice of gynecologic oncology; 800.444.4441.

Informational

Cancer Care, Inc. - National organization helping cancer patients & their families. Provide support groups, educational programs, workshops, teleconferences and one-to-one counseling; 800.813.HOPE.

CancerNet/Physician's Data Query(PDQ) – Info on cancer treatment, supportive care, screening, prevention, & clinical trials. Access to CANCERLIT containing over 1.4M citations & abstracts from 4000+ different sources, including biomedical journals, proceedings, book reports, & doctoral theses.

Candlelighters Childhood Cancer Foundation - Provides help to children with cancer and their families. Offers a network of peer-support groups for parents, a "Youth Newsletter," a bibliography of cancer related materials, an Ombudsman Program on insurance concerns, a long-term survivor's network, and bereavement counseling; 800.366.2223.

NCCDPHP Cancer Prevention & Control Program - Part of the CDC, the Division of Cancer Prevention & Control (DCPC), works with national cancer organizations, state health agencies, other key groups to develop, implement, & promote effective strategies to prevent & control cancer.

Children's Hospice International - A membership group working to improve hospice care for children; 800.242.4453.

Cure For Lymphoma Foundation (CLF) - Raises money for lymphoma medical research, and provides support & education for lymphoma patients & families.

Encore (YWCA of the USA - Office of Women's Health Initiative) - For women over the age of 50 that are in need of information related to early cancer detection information, breast & cervical cancer screening, or support services.

Gilda Radner Ovarian Cancer Familial Registry - Collectis data on the link between heredity & ovarian cancer;  800.682.7426.

Gynecologic Cancer Foundation

Healing Odyssey – Non-profit organization providing recovery & cancer support programs for cancer survivors.

Hospice Link – Non-profit providing members of the public and health care professionals with educational information about the many facets of caring for the dying and bereaved; 800.331.1620.

Iinternational Myeloma Foundation - IMF provides up-to-date information and services for the treatment and management of multiple myeloma; 800.452.2873.

National Alliance of Breast Cancer Organizations (NABCO)- Represents some 375 organizations concerned with breast cancer; 800.719.9154.

National Brain Tumor Foundation; 800.934.CURE.

National Cervical Cancer Coalition (NCCC)

National Center for Complementary and Alternative Medicine - Disseminates information on complementary and alternative (CAM) medicine to practitioners and the public. Web site provides access to a CAM index consisting of more than 90,000 bibliographic citations from 1966 to 1997.

National Lymphedema Network

National Surgical Adjuvant Breast and Bowl Project (NSABP)

OncoLink - University of Pennsylvania sponsored program providing a multi-media presentation of various cancer related educational resources.

Patient Advocate Foundation - Provides cancer patients with help dealing with insurance coverage, payment for managed care treatment and help understanding managed care; 800.532.5274.

Ronald McDonald House - A national network of temporary housing facilities for families of children hospitalized with life-threatening illnesses. Many states and major cities have Ronald McDonald Houses.

Share: Self Help for Women with Breast or Ovarian Cancer – Group of breast & ovarian cancer survivors wanting to help others. Free Bi-lingual (English/Spanish) services include hotlines, support groups, educational programs, & advocacy activities; 866.891.2392.

Skin Cancer Foundation - National organization focused on the treatment & prevention of skin cancer. Toll-free phone line is 800-754-6490.

Support for People with Oral and Head and Neck Cancer - Founded in 1991, this is a by patient-directed, self-help organization dedicated to the needs of oral, head & neck cancer patients. Services address the broad emotional, physical and humanistic needs of these unique cancers.

Susan G. Komen Breast Cancer Foundation – Founded in 1982, this is one of the world’s largest grassroots network of breast cancer survivors & activists, working together to ensure quality care for all & energize science to find the cures.

The United Ostomy Association, Inc. - An association of ostomy chapters dedicated to complete rehabilitation of all "ostomates"; 800.808.7866.

US TOO International, Inc (US TOO) - A network of chapters providing support and services to prostate cancer survivors; 800.808.7866.

Vital Options - Founded in 1983, this non-profit provides communications, support and advocacy to facilitate a global dialogue on cancer.

Y-ME National Breast Cancer Organization (Y-ME) - Y-ME provides support to individuals concerned about, or diagnosed with, breast cancer. A toll-free hotline is staffed by trained counselors and volunteers who have had breast cancer. Phone 800-221-2141 (24-hour hotline).